I am no expert, just a mom who learned a lot about resources out there for parents of preemies and/or children with disabilities. Donavon, our son was born on February 9, 2007 weighing 1 lb and 8oz. He was a micro preemie, a 24 weeker, our tiny miracle. He was transported from Baptist North to "big" Baptist and I didn't get to see him again until February,11. Nothing can prepare a parent who is seeing their preemie for the first time. He was 9 inches long and beet red, his skin was transparent. He had so many tubes and wires coming off of him, and yet the first thing I focused on was just how perfect he was.
He would not stay long at Baptist though, he had obstacle after obstacle that Baptist could not deal with. The Doctor's are wonderful there, they just are not equip for extreme cases.Donavon was born with *brain bleeds, grades 3 and 4 the highest on the scale. This was a pressing issue the days after he was born, but were soon overshadowed by a condition called *NEC (Necrotizing Entercolitis). When Donavon was fed by feeding tube for the first time his intestines were not prepared to digest food and perforated. His abdomen turned black and he was on the brink of kidney failure for 48 hours. He was getting blood and platelets around the clock and many medicines as well. Finally, with prayers from around the state and a wet diaper, he pulled through it. To this day every Doctor that sees him tells us what a blessing it was that he pulled through.
Surgery #1, March 22, 2007: Six weeks after he arrived at Baptist he was transported to Arkansas Children's Hospital. Within hours of his arrival he was in emergency surgery to save his life. Donavon's bowels not only perforated in 1 place but in 3, the surgeon said this was very rare. After 3 long hours of surgery Donavon came out doing great and continued to heal over the next several months.
Surgery #2, April 23, 2007: Donavon had a condition in both eyes called *Retinopathy that needed surgery to ensure vision. This typically takes 30 min. per eye, but Donavon took 1 hr per eye. The surgery was a success, at this time he wears glasses for near sightedness.
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He would not stay long at Baptist though, he had obstacle after obstacle that Baptist could not deal with. The Doctor's are wonderful there, they just are not equip for extreme cases.Donavon was born with *brain bleeds, grades 3 and 4 the highest on the scale. This was a pressing issue the days after he was born, but were soon overshadowed by a condition called *NEC (Necrotizing Entercolitis). When Donavon was fed by feeding tube for the first time his intestines were not prepared to digest food and perforated. His abdomen turned black and he was on the brink of kidney failure for 48 hours. He was getting blood and platelets around the clock and many medicines as well. Finally, with prayers from around the state and a wet diaper, he pulled through it. To this day every Doctor that sees him tells us what a blessing it was that he pulled through.
Surgery #1, March 22, 2007: Six weeks after he arrived at Baptist he was transported to Arkansas Children's Hospital. Within hours of his arrival he was in emergency surgery to save his life. Donavon's bowels not only perforated in 1 place but in 3, the surgeon said this was very rare. After 3 long hours of surgery Donavon came out doing great and continued to heal over the next several months.
Surgery #2, April 23, 2007: Donavon had a condition in both eyes called *Retinopathy that needed surgery to ensure vision. This typically takes 30 min. per eye, but Donavon took 1 hr per eye. The surgery was a success, at this time he wears glasses for near sightedness.
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